February, 2019 She has been in school for a few weeks now and I fully anticipated her arriving home droopy and exhausted but even her first day back was a pleasant surprise when she arrived home and was full of information about her first day of school. Last Friday we went for her 4th infusion... Continue Reading →
Journal 5: Hospitalization for UC and Erythema Nodosum
My daughter has been pumped full of steroids, antibiotics and UC meds for the past 4 days. Her Erythema Nodosum is so painful we are applying cold compresses. We are managing her pain with Tylenol and it seems to be helping. MRE showed her kidneys flared up as well as a small part of her... Continue Reading →
Journal 4: Hospital Discharge and More Struggles over 10 Months Later…
Each week that passes my daughter is gaining more and more weight and we celebrate each pound! She is still eating double portions and they are very slowly tapering her down off of steroids over a series of several weeks. School has started and we are thankful our high school here is sending her work. ... Continue Reading →
Journal 3: My Daughter Has an Eating Disorder, or Does She? How I Addressed Assault and Other Abuse
Well, now we see! This has been an exhausting week of travel and emotional strain. I called the hospital like I do each night hoping to speak with my daughter and the nurse who answered the phone said, “Um, she’s being taken to the ER. Sorry we haven’t had time to call you yet.” They... Continue Reading →