My daughter has been pumped full of steroids, antibiotics and UC meds for the past 4 days. Her Erythema Nodosum is so painful we are applying cold compresses. We are managing her pain with Tylenol and it seems to be helping. MRE showed her kidneys flared up as well as a small part of her... Continue Reading →
Journal 4: Hospital Discharge and More Struggles over 10 Months Later…
Each week that passes my daughter is gaining more and more weight and we celebrate each pound! She is still eating double portions and they are very slowly tapering her down off of steroids over a series of several weeks. School has started and we are thankful our high school here is sending her work. ... Continue Reading →